Moving day has been postponed until tomorrow morning. Looks like more of a staffing issue on a long weekend rather than Addison not being ready to go.
She has been breathing a bit faster than normal over the past 24 hours and doctors think that could be due to excess fluid. They’ve changed her diuretic to help her pee it out. When you’re at the hospital, you quickly learn the value of ‘liquid gold’. After Addison went on ECMO for the second time, we all cheered when there was pee in her tube. Seriously…pee is a big deal. So is the other ‘p’. At rounds a couple of days ago, there was quite a major discussion about Addison’s poopy diapers – was it diarrhea or was it just regular baby poo? We volunteered to take photos of the evidence and compile a slideshow of the results for the next session of rounds.
By the way, today is now 3 weeks since Addison was first admitted to the hospital. WOW. Can you believe that? Feels like several lifetimes ago. And she has now been in hospital longer than she was at home…hopefully we will be rectifying those numbers soon.
Elaine, Aaron and Addison