Our first night upstairs in the Children’s Heart Unit was sleepless, thanks to Addison. Aaron and I both stayed overnight on these very uncomfortable hospital cots (they kind of sag in the middle and since they are covered in easy-to-clean plastic, they crunch every time you move). Little missy decided she didn’t really want to sleep and was quite fussy. At about 5am, our overnight nurse Melissa figured out a potential reason for Addison’s unhappiness – she had started feeding her through gravity rather than a controlled pump, so the formula was going down the tube much faster and perhaps causing discomfort in her tummy. Of course, she slept like a champion starting from 6am on. We’ll see how tonight goes!
We haven’t wanted to ask about possible dates for going home…as my friend Chardon wrote in an email, it’s like saying ‘shutout’ when the game isn’t quite over yet. But this morning at rounds, Dr. Gandhi said we should target MONDAY as the discharge day! Yes, that is THIS Monday, which would be 4 weeks after we first arrived here, 3 weeks after her heart transplant, and Addison would be one day shy of 7 weeks old.
Here is what needs to happen before we go:
– Aaron and I need to learn the ins and outs of administering all of Addison’s medications (and there are several of them)
– We need to be able to feed her via the tube, including reinserting the tube in case her wandering fingers pull it out
This weekend, the plan is to go on a trial run, where Aaron and I are responsible for all her care with a nurse only on standby.
Meanwhile, Addison is continuing to impress all the staff here with her myriad of facial expressions. She certainly isn’t shy about letting everyone know what she is thinking!
Oh forgot to mention in yesterday’s post – Happy 6 week birthday little girl!
Elaine, Aaron and Addison