Azathioprine, Septra, Predninsone, Tacrolimus, Bumetanide, Levertiracetam, Nystatin, Ranitidine, Spirolactone. This is not a lesson in Latin. This is a list of all the mediations Addie is on. (It is by no means complete either. I have just left out the more routine ones.) With our discharge from hospital rapidly approaching, we are now responsible for administering all of these drugs sometimes more than once a day. The little princess does reasonably well with most of them too. She isn’t a fan of few we have to give her orally, but through a bit of negotiating we manage to stuff it all down there.
Now that the intensity of the first month has worn off, the prospect of going home is actually a bit daunting. A transplant is not a cure for heart failure, it is just a treatment. There will be a lifetime of medication, and tests, and hospital visits, and infection control, and whatever else we haven’t thought of yet. I’m sure all of this becomes routine, but right now it is all just a bit overwhelming. Strong family support has made a huge difference in how we are approaching the next few weeks. Knowing we are not alone in caring for Addison has made this challenge seem a little less intimidating.