Except for the holiday Monday, Addison has had some kind of medical appointment every day this week. On top of three trips to BC Children’s Hospital, she also had a home visit from her Infant Development Consultant.
There was the stop at the BCCH lab for blood work Tuesday, then on Wednesday it was Transplant Clinic and an appointment with her pediatrician for round two of immunizations (that was oh so enjoyable for Addison, but she got the three-in-one jab again by an army of nurses in the Medical Day Unit). Another visit to the hospital on Thursday for a follow-up EEG to see if those subclinical seizures she had in the ICU are gone. Friday was Infant Development day. Plus on top of all that, we are introducing solids! Oh yeah, there was all the TV star stuff too. Whew. I am exhausted just writing it all down.
Thank goodness it is Friday, not that weekends mean much to the little princess. She pretty much sticks to her usual routine regardless of the day. Love those 7am wake-ups.
However, this is an extra special Friday. We are heading off on our first real family vacation! Since we can’t fly anywhere for the first year post-transplant because of all those germs on airplanes, not to mention avoiding foreign countries with equally foreign health care systems, we had to stick to a driving trip in BC. A week in an oceanfront cottage on Pender Island seemed to be the perfect antidote to the most stressful five months of our lives. This also means absolutely no medical appointments for an entire 10 days! It will be the longest doctor/hospital-free stretch we have had since Addison’s birth. Definitely worthy of celebrating and I can’t think of any place better than basking in the glorious sunshine of our waterfront deck. First we have to finish packing. Has anyone figured out how to ‘travel light’ with a baby????
Elaine, Aaron and Addison