I set up my little “studio” in the living room today as the sunshine poured in for Addison’s official 9 month photo shoot. The princess has been having a pretty good week, even with that long day in the hospital on her actual 9 month birthday. I am happy to report her face rash/eczema is almost gone (we went back to the cortisone on the recommendation of a new medical expert on her team, a dermatologist). Her face and arm don’t seem puffy anymore. Now as for those Tacrolimus levels…that’s another story. We will get the full analysis next week at clinic, but preliminary numbers show Addison’s levels don’t seems to peak until at least 7 hours after taking her dose, with a range of 5.5 to 10.1. One thing is for sure, she likes to keep everyone very busy!!
Elaine, Aaron and Addison