A Chinese New Year week of “firsts”

Snow baby!

I could blame a raucous Chinese New Year celebration for my blogging delinquency, but alas, the reality of my life is not nearly that exciting. Truth be told, it has been a busy week mostly for a very exciting reason (and a few assorted not so exciting reasons). I have been spending hours on the computer and phone working on plans for our first big trip with Addison! To celebrate her 1 year birthday and 1 year post-transplant – wow that is coming up so soon – we are going to Italy…finally. After our last-minute cancellation last year (which I wrote about HERE and HERE), we have stayed very close to home. This is the longest Aaron and I have been on the continent in years and it is a big milestone for us to be able to plan a trip with the little princess.

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Addison has been hitting lots of  ‘firsts’ already! She enjoyed (sort of) her first few snow days. She celebrated her first Chinese New Year with some of my mom’s delicious dumplings – jiao-zi are a traditional CNY food and my mom’s are mmmmmm good. She received her first red pocket money from Uncle Scott and Lao-lao and Gong-gong. She went to the Vancouver Aquarium for the first time. Whew!

On a less exciting note, Addison’s puffy face made another appearance on Friday so we had to go back to Children’s Hospital for a visit with her pediatrician. There is some concern the blood flow through her right neck arteries/veins could be partly obstructed due to those giant ECMO cannulae that were placed there. This means another trip to the hospital this coming week for a neck ultrasound and then an MRI down the road just to check it out.

Oh yeah, and those Tacrolimus levels (as I wrote about HERE)? Sigh. Her latest blood work has her level at 6.7 – still not ideal. So the dosage has gone up AGAIN…5.5ml/twice a day. More blood work in a few days.

We are definitely looking forward to a little dolce vita in less than 3 months!

Love,

Elaine, Aaron and Addison

5 thoughts on “A Chinese New Year week of “firsts”

  1. Congrats on your trip you have been trying to take for the last year. and so glad you are starting to get progress with Addison’s Tac levels and hope they get the right dose the next visit:) Can’t wait till you post the picture of your trip you all deserve it 🙂

  2. I have missed photos and your posts!!!!! So happy to see Addie experiencing a few firsts!!!!! Really frustrating about her tac levels and her puffy face……..I’m sure the amazing staff will figure it all out!!!! One day at a time!

  3. Elaine,
    Thank you for the kind comments you left on my blog, it meant a lot to me.
    Reading about everything Addison went through and how far she has come gave me hope when things were dark. Have a wonderful trip, ya’ll deserve it!

  4. Hi Addison! I’m so very happy for you … trip to Italy! One of my favourite treats is dumplings. And I know your grandma makes the best. Love you, Sweetie! Thanks for the photos. Love your New Year’s Eve tartan and Chinese jacket.

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