Nothing like a little hydrocortisone to work wonders on baby eczema. Addison’s face rash is virtually non-existent now that I have given up on more ‘natural’ remedies and gone with the wonders of modern pharmaceuticals. Plus a visit with her dermatologist yesterday (yes, she has yet another medical expert to add to the team roster) confirmed I can slather on hydrocortisone as often as needed. I had heard a lot of warnings from other parents and even medical professionals about the dangers of too much hydrocortisone. Apparently, that is only when it is used in extra strength concentrations for a long extended period of time. According to the paediatric skin doctor, organ transplant patients seem to have more issues with eczema. She has a few transplant kids on her patient list and now Addison.
And an update on those Tacrolimus levels – I know you have all been waiting with bated breath. Yay!! Blood tests last week have the little princess at 8.3!!! I guess the monstrous dose is doing the trick. Her cardiologist is happy with that number so we are staying the course. For Addison, this means three weeks without an arm poke.
Tomorrow morning, we have the ultrasound of her neck veins to see what’s happening and if there could be a reason for Addison’s puffy face. Hoping for some more good news from that hospital visit so we can get back on track to Italy. Small steps!
Elaine, Aaron and Addison
PS Yesterday was 9 big months post-transplant!!