Italy here we come!! Addison’s cardiologist has given us the all-clear to go on our first airplane trip with the little princess. Dr. Human isn’t too concerned with the results of her ultrasound last week and said the damage to her subclavian (the main vein to the arm) and jugular veins is to be expected from her time on ECMO. He says she has good collateral circulation that has formed to take over the blood flow and that should keep improving with time. She may be more susceptible to puffiness depending on her body position, which makes sense as to why she looks the worst in the mornings when it flares up.
It is such a relief to be able to continue planning our trip, not only because I have always wanted to go to Italy, but for the milestone it marks in our baby girl’s life. It wasn’t that long ago when I was not able to even think beyond the next hour in her life. Getting through each day was such a monumental milestone.
While I am thoroughly enjoying my fantasies about a few nights at some Tuscan farmhouse apartment or a Florence pied-a-terre, planning a trip with a child who has a medical binder several inches thick is not that simple. We have already looked up all the paediatric hospitals in Italy – in case you are curious the one in Florence does cardiac care and the one in Rome does transplants. There is also a major mental hurdle for us because we won’t be a 15-min drive or quick phone call away from Addison’s medical team. Aaron has talked me down from the ledge a couple of times already.
But every journey begins with a single step, so Italy here we come!
Elaine, Aaron and Addison
PS: Note from Addison – Happy Anniversary Mommy and Daddy!! Love from your little princess