So my little dream of getting through Addison’s first year post transplant without hospitalization has disappeared in too many rounds of diarrhea. (Yes there is potty talk in this post.) We are back in the ER tonight because the princess was listless and lethargic today, dusky purplish hands and feet, and diarrhea since Thursday. Dehydration appears to be the culprit. They are getting a room ready for us upstairs in the Children’s Heart Unit for an overnight stay.
The cause of the diarrhea is not as simple a mystery to solve. Blood bacterial infection has been ruled out from Thursday’s tests, which is a good thing. A GI bug or urinary tract infection are both possibilities.
First order of business – get some fluids into Addison. Having watched three heart breaking attempts to put an IV in her little hands and feet, we are now syringing Pedialyte in 5 ml at a time. While she tries to sleep. Up next is a catheter. And a fourth attempt at an IV. Good times ahead!
Elaine, Aaron and Addison