The princess woke up this morning very happy and chipper after a 12+ hour sleep – nothing like the aftereffects of a little anesthetic to help you sleep like a baby! We trekked back to BC Children’s Hospital for the GFR test looking at kidney function. The glomerular filtration rate test involves injection of an isotope so nuclear images can be taken of the kidneys in action – this takes half an hour with the patient strapped into a little straightjacket – then there are blood draws at two hours and three hours post isotope injection.
The GFR required an IV so that’s why this test was scheduled the day after the biopsy…the hope being the IV would survive overnight. It made it through the injection of the isotope, but unfortunately when it came time to draw blood, it was a bust. So Addison had to endure another two needle pokes today.
Then some fantastic news later in the day after we got home. NO REJECTION! The preliminary biopsy results are back and there is no evidence of rejection…ALL CLEAR!!!!! WOO HOO! It was what we were expecting and hoping so getting confirmation that her new heart is working beautifully is a relief. Another major hurdle we’ve come through.
I sometimes get a little sad when I think about everything Addison has gone through in her 16 months of life. I’m sure she’s now had more needles than I have. I’ve only undergone surgery once (and that was for wisdom teeth so it doesn’t really count). She has had so many different tests and procedures, met so many different specialists, been to the hospital so many times…it’s overwhelming. Yet she is easygoing and happy. She may take some time to warm up to new people and situations, but once she does, she is full of smiles. She cries when she’s getting poked and prodded, but as soon as it’s done, she’s back to her usual cheerful self. It’s as if she’s instantly forgiven whoever is causing her pain and discomfort. She doesn’t seem to dwell on any of the negatives and seems intently focused on enjoying life. It really is inspiring. I feel so proud of my baby girl.
Elaine, Aaron and Addison