It has been a long few days since learning our stay at BC Children’s Hospital suddenly jumped an additional three weeks. At least for Aaron and I. I went back to work, Aaron works a full week starting Monday. While Aaron has been at the hospital most of the time, I have been coming by in the mornings before my shoots, then straight back here after work. Since I am still coughing up a lung, Aaron has also been on most overnights. Needless to say we are tired.
On the positive front, Addison now has a PIC line instead of a regular IV. It is a lot more stable and much easier to unhook between sessions. She has been off oxygen all day and unmonitored. This means we were able to break out of “jail” for a couple of short outings. We met up with Auntie Melodie and cousins Marissa and Aidan for some fun at Chapters.
The infectious disease doctor has also told us two weeks of IV antibiotics may be enough, depending on how Addison is doing. And her cardiac team really wants us out of the hospital as soon as possible so they are looking into the possibility of the princess going home on her IV meds with Mommy and Daddy as her nurses.
Right now, we are attempting to see if the princess can go the whole night without oxygen. Every little step in the right direction gets us one step closer to home.
Elaine, Aaron and Addison