At least the waiting game ahead of us doesn’t come with any risks of complications from the anesthetic and catheter. That makes it a bit easier. Plus I have gotten much better at not stressing over things which I can’t control. Ok, I can see Aaron rolling his eyes at me…of course I am still a worrier so I don’t completely let go. But what mom would be able to go about her daily routine completely blasé to pending test results?
Addison likes to keep her doctors on their toes and today’s biopsy was no exception. Access was a bit tricky so they had to poke her multiple times to finally get the right spot. Unfortunately, that left the Princess with a much-larger-than-pea-size bruise around her left subclavian, looking rather like a pincushion. Then they also did a stress ECHO while she was under to see how well her heart muscles are working. It was another full day at BCCH.
The Princess was groggy in recovery, but Popsicles helped, along with a few episodes of Dora, and the promise of cupcakes. By this evening, she was back to her usual antics. I kept asking her if her shoulder bruise hurt because our nurse had advised we give Addison an extra Tylenol dose before bedtime, but she told me repeatedly, “Momma, my bruise is feeling much better!”
We should know by Wednesday if there is any rejection, though our cardiologist says all other signs today look great. We are hoping for another ZERO because that will really set the course for treatment. Addison’s extremely low dose of Tacrolimus has been a bit of an unknown and the biopsy will confirm that rejection isn’t an issue for her. This will likely mean longer intervals between Transplant Clinic, and possibly even fewer biopsies. That would be a huge relief in so many ways. The doctors are slowly losing access through her left subclavian so in a couple more catheter procedures, we will likely be looking at going in through her liver, which has higher risks.
But I’m not going to get too ahead of myself. The important thing is we successfully got through our fourth biopsy today!!
Elaine, Aaron and Addison