Maybe it’s the sleep deprivation or insane newborn schedule, but I’ve been thinking a lot about where we were five years ago. When Addison was the same age as Charlie is right now, we stepped off a cliff into the absolutely terrifying life and death world of heart failure and transplant.
So even though this is baby number two, none of it is routine for me. I actually have no idea what a typical three, four, or five week old baby is supposed to do. Heck the only “normal” I know is up to two weeks and six days, which is when we took Addison to the Emergency Department. Everything after that has been the “new normal”.
It is actually a little daunting to think we are embarking on a whole new path with Charlie. I’ve been reading about the six week growth spurt, establishing good sleep behaviour in newborns, and normal pooping patterns. Sometimes I wonder how we dealt with it five years ago – being first-time parents, having a newborn, and the medical drama on top of that. Just living with a newborn is overwhelming at times! There have been a few occasions when I have had to remind myself not to sweat the small stuff…and really it’s almost always small stuff. Even if my life is ruled by a tiny, cranky, crying and angry baby who refuses to sleep anywhere but in my arms. I don’t remember Addison being quite so cantankerous in her early days, but maybe she was so relaxed/sleepy because her heart was failing!
So I take a deep breath and cuddle Charlie a little closer. The most important thing is she’s healthy. We just got the all clear after an echo and ECG at the BCCH Heart Centre this afternoon. It’s such a relief to find out Charlie’s heart looks completely normal. It’s all going to be ok. And one day (hopefully soon) I will get to sleep longer than three hours!
Elaine, Aaron, Addison and Charlie