Tacrolimus – oh why are you such a pain? #lifeaftertransplant #transplantlife

We’ve been doing a bit of a battle with Tacrolimus over the last couple of weeks, which I guess is just the latest scrimmage in the ongoing war. But I am happy to tell you that we are winning, at least for now. Though to say you are winning over a toxic, yet life-saving drug would only make sense to transplant recipients.

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It all started two weeks ago when Addison picked up a little virus, which involved headaches, fever, lethargy, and vomiting. She was knocked off her feet for a few days, and then bounced right back. She was supposed to have blood work that week, just before Transplant Clinic, but her transplant team asked us to wait a week because viruses and other illnesses can throw off the numbers. By the way Clinic was great…Addison’s cardiologist is very happy with her heart. Yeah! (You can see more from our clinic visit in the Global news story posted below.)

IMG_2945So we went for blood last week instead. Now as I wrote last month, we increased her dose of Tac in May with the ultimate goal of a slightly higher trough level – 4 to 6. Well, Addison doesn’t like to make things simple. Her levels came back 6.7!! Plus her creatinine (a measure of kidney function) had also spiked! A double whammy.

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SO…another round of blood this week just to make sure it was an anomaly due to her illness. Sure enough, Addison is now at a solid 4 for Tac, and her creatinine is back to normal. WHEW. For now, we are staying the course!

And that’s a good thing because the McYong household is going about Mach 999 these days. The Canadian Transplant Games start in four days, and not only is Addison competing, we are excited to be hosting her donor mom Felicia and her two daughters. They are coming to Vancouver for the week to take part in the Games!!! Screen Shot 2018-06-27 at 9.33.30 PM

PLUS I am the Games volunteer Communications Lead. It is so crazy right now and there just aren’t enough hours in the day for me. I will try to post as often as I can, but they might be quick updates. (Follow along on Instagram for daily updates.)

For now, a few random photos from earlier this month…

Love,
Elaine, Aaron, Addison and Charlie

 

2 thoughts on “Tacrolimus – oh why are you such a pain? #lifeaftertransplant #transplantlife

  1. What a relief to hear addies levels are normal and her heart is healthy!!! Ready for the transplant games!! Go Addie!!

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