There are many silver linings to this journey we have been on since Addison was diagnosed with heart failure and received a heart transplant. Don’t get me wrong – none of them are worth the heavy price tag of the life-threatening and life-limiting medical condition we now face – but they certainly make the road a little easier.
When Addison was three years old, we registered her with Children’s Wish Foundation. It was sobering to know our child was one of those ‘lucky’ ones to qualify, but also uplifting to know Addison was ‘lucky’ enough to have this opportunity. It’s kind of a weird double-edged sword.
As you know, over the years, Addison has had many weird and wonderful ideas, including leading the Carnival Parade in Rio, seeing lemurs in Madagascar. Last year, she came up with an idea that seemed to have all the stars aligned…her love of space and travel to a non-malaria/Zika country. We are SO EXCITED TO SHARE THAT ADDISON IS GETTING HER WISH IN A FEW WEEKS!!!!!! And she was pretty darn over the moon about it too….
We are heading down to Houston for a meeting with Canadian astronaut David Saint Jacques and a behind the scenes tour of the Johnston Space Centre!!!!!!! David blasts off to the International Space Station on December 20 and is leaving for final preps in Kazakhstan within a couple of days of his meeting with Addison.
Addison is prepping a list of important questions to ask David, we’ve been reading and watching as many of his interviews as possible, and generally just geeking out on this once-in-a-lifetime opportunity. Aaron and I are pretty thrilled we get to ride along on Addison’s coattails. Charlie is kind of indifferent but she does enjoy going on airplanes.
We are so grateful to Children’s Wish for making this happen, and we want to say THANK YOU to all the generous donors who support Children’s Wish and help make dreams come true. You are all OUT OF THIS WORLD!!!
PS: But first, we are actually heading (back to) Las Vegas TODAY. Addison and I were asked to present at the Association for Multicultural Affairs in Transplantation annual conference, so we decided to make it a family trip…and drive to San Diego after the conference. 🙂
Elaine, Aaron, Addison and Charlie