May 24, 2011
“There but for the grace of god go I.”
When we were given the news Addison would need a heart transplant we were flooded with a range of emotions. “How could this happen to us?” We felt like we were the only family in the world who had to deal with this. As we move along in this journey we are quickly discovering we are not alone. In fact it is shocking how many kids are born with heart defects, or develop cardiac issues. 1 in 100 kids is born with a defect serious enough to require surgery. While that is only 1 percent, the number blew me away. It still strikes me as awfully high. The surgeons at BC children’s hospital will see between 300 and 400 heart patients just this year. In our short time in the ICU there have been at least a half dozen other kids who have needed heart surgery. We know we are incredibly fortunate. Getting a heart transplant so quickly is almost unheard of, but yesterday were given some clarity just how fortunate we are. A new cardiac baby was brought in straight from the delivery room. Mom and Dad spent some time with him, but were given the worst possible news. There was nothing the surgeons could do. He was 1 day old.
Say a prayer for this family. Think about all the families who need the doctors and nurses at BC childrens hospital. There are a lot more than you think.
May 23, 2011
A bit of an admission here, I am a soft touch. I knew I was going to be in for a world of trouble as Addison started to grow up. How could I say no to such a beautiful little girl? It’s not hard to imagine how the conversation would go. “Daddy, can I have an ice cream/pony/new car?” Now what am I supposed to do? After the heart transplant I fear spoiled might be a bit of an understatement as a way to describe our little princess.
All kidding aside, we are so lucky to have such a wonderful baby. She is a fighter who continues to amaze both of us. I was asked by a mom to be soon after Addie was born how it was going. I responded “great!” Seeing her in her mom’s arms was a life changing experience. Ask me today how its going, and I wouldn’t hesitate to respond “Even better!” After 3 weeks in hospital, the definition of a life changing experience has been altered somewhat, but not for the worse. By anyone’s definition she is a normal healthy baby, who just needed a new heart. Other than a few extra doctor’s visits there is nothing here we can’t manage, and nothing Addison can’t handle.
Over the course of the next few years, I will be posting here. (Hopefully a little different than Elaine’s missives.) A chance for you to read about what post transplant life is like for us, a chance to offer support to other families with similar challenges, and really a chance for me to get some stuff off my chest. Thanks for reading, you’ll hear from me soon.
ps, you can follow me on twitter too. twitter.com/aaronmcglobalbc