From the Heart

I haven’t had time to respond to the huge outpouring of support, words of encouragement and beautiful notes of love that we have been getting daily from all of you.  Some of your messages have made us laugh. Some have brought (even more) tears to our eyes.  Some of you have shared your own stories of battles that have been fought and won.  Some have lifted our spirits with words of faith and spirituality.  You have all offered physical and emotional comfort that is helping us through this roller coaster ride that has become our new reality.  We really can’t thank you enough for opening up your hearts to us and embracing our struggles as your own.  It’s true what they say about communities coming together in times of trouble – we never realized just how wide our circle could get in our time of need.  So many of you have also reached out to your own family and friends with Addison’s story.  I think it’s fair to say there are people all around the world who have been praying and sending positive thoughts our way.  Using the ‘m’ word is so cliche, but this will probably be the closest thing to a miracle I will experience in my lifetime.  Addison’s road to recovery is far from over and this has changed her life and our lives forever, but she is well on her way.

Thank you from the bottom of our hearts.

(This is where I plan to post comments from all of those who have emailed such words of encouragement.)

16 thoughts on “From the Heart

  1. This is such a great idea, E/A!!!!! It is so true how incredible people have been all over the world (my HK family!) – so many emails and messages have made me cry. Reading this blurb from you, Elaine, has brought tears to my eyes – just thinking about the massive numbers of emails and the kind, thoughtful words that people have written – all for little Addison…
    She is definitely a one-of-a-kind million dollar baby….such an incredible fighter who will always, always be cherished and adored.

    I cannot wait to hold her again in my arms and hear her little cry again…(July 21…..????) 🙂 Until then, I’ll have to be satisfied with pictures, videos and skyping!!!!! 🙂

    Love you guys!

  2. I am SO sorry to hear what you guys and your little girl have been going through. It was hard not to cry reading the posts. SO happy to hear she’s doing better. And of course, if there’s ANYTHING at all you guys ever need help with, please do not hesitate to ask. (even just watering plants or picking up the paper!) Seriously. You can message me on FB. I’m sending as many positive thoughts your way as possible.

  3. Elaine: What a heart break for you both! Your precious baby girl is a real fighter and I know that she will make you both so proud. I have put her name in our prayer circle,praying that she continues to amaze you with her strength and fighting spirit. Sending you positive thoughts and prayers. Julie

  4. Hi Elaine –
    Raz and I were hoping you’d drop by any day this summer with Addison in tow at the church classes and had no idea what was happening until we came across your blog today. So sorry to hear what life has thrown you as a new parent, but am so grateful to hear that things are on the upswing. We’ll keep wishing, dreaming, and praying for you and votre petit chou. And yes, all the ladies in the class can’t WAIT to meet your little fighter. We’ll have a tiny Raz Chan Fitness layette waiting for her. Stay positive, my friend. We’ll see you all soon.

  5. Reading yours and Aaron’s posts brought back many, many memories from the time that Morgan was in BCCH. The staff, the atmosphere – I’m sure a few things have changed since Moe was in ICU, on the Cardiac ward (he spent a yr there) and in 3B (another yr +). You definitely feel part of a family there – surrounded by the caring staff – your comment, Elaine, about the nurses calling in to check on Addisons progress reminds me of the times, even now, when I take Moe to his appts there & we get greeted by a staff member who remembers caring for him or cleaning his room or doing therepy with him. Even tho you will leave BCCH you won’t be forgotten by the staff there, it’s one of the things that make it such a special hospital. The care you will receive in the coming years & the compassion will comfort you two a lot. Even after 27 years Moe is still receiving help from BCCH (because of the rareness of EB) & it has been a godsend, for both Gary & I and Morgan. Your little one is sure a cute one! and that hair! beautiful 🙂 love and prayers to all of you..

  6. Dear Addison, you have chosen the best parents in the whole entire world to love you and take care of you. Every time a doctor or nurse touches you and holds you, know that they have spent many many years dedicated on studying how to heal, so you are being touched by loving and healing hands.
    Know that this world is full of wonderful things, and there is so much to discover and experience. Know, that every time your parents hold you, that there is so much love ooozing out of them, and they want to share with you all the wonderful things that they love. There is so much love for you in this world Addison, and you are loved, and this world loves you in it.
    Love and love and love, a friend of your parents.

  7. Yah!!! I am cheering for your strong little soul each day. I know we are yet to meet but I feel like I have been on such a rollercoaster with you are I have found myself on the edge of my seat reading each and every word. The highs and lows have been met with cheers and tears. I can’t believe how far you ll have come and how super strong your little princess is – wow what are super star you have. The photos on your blog are amazing she seems to be getting more animated every day and don’t get me started on that mop of hair!!!
    Keep up all the good work Addie.
    Love Debbie

  8. Hey, you three!! Just stumbled on your blog. Wow! God must really trust you to give you that precious little bundle. I want to agree with him, if I were in such difficulty I would want you to be my parents. Keep fighting for your little angel, it will make you stronger and more together. (I’m trying to be encouraging without being maudlin) God bless you all, you are in my prayers!!

  9. I have really enjoyed reading your blog. It was very very touching being in Bali at the wedding and hearing your letter read during the reception. Your emotional writing was a highlight of the evening. Little did I know that you are just as talented at photography and crotcheting as you are at writing! The pictures are amazing. Happy belated 4 months to Addison. I don’t know if you’re interested in “alternative medicine,” but after reading the effects of the drugs, etc. if you ever want to ask me about natural immune boosters, I’m in touch with a lot of wonderful people in that field who might be able to suggest something for Addison. Penelope will be celebrating her 4 months on Aug 23. Where did you get those adorable onesies with the months printed on them?! You all are just so impressive.

    Lots of love to you all,
    Lauren, Keith and Penelope Woodfin

  10. Miracles do happen. I had my first daughter die at age 5 months from something very rare. Then when I had my second daughter, when she was 8 months old she had an 4 1/2 hour seizure. She was transfered to childrens hospital from surrey because they could better handle if she went back into another on after stopping the first one. When we got back to victoria we had the same specialist look after her as he was the one that tried to save my first daughter. Two years went by then he said to me when are you going to have another one, I said I can’t go through this again. He told me have faith and he will be there for me. You what he was right, my third daughter was born never sick at all. I believe all children are blessings. I believe your little addison is truly a blessing. She is also bless to have you two as her parents

  11. Hi,

    I saw your story on the news and I wanted to let you know that nothing is impossible post transplant. I received a heart transplant three and a half years ago. Since then I have returned to active duties as a firefighter regaining what I had almost lost. Drive determination and a positive attitude is so so helpful on the way to recovery. I know that without this positive attitude things would not have progressed to where I am today.

    Stay strong for little Addison and face any challenges head on. In doing so you will be amazed at what can be.

  12. Wow
    What courage you both have displayed, and dear little Addison is an amazing fighter. Thank you for sharing your story. We wish you the best and pray for Addison’s continued good health and happiness.

    Karen and John Leyburn,

  13. Aarron, Elaine and baby Addison,

    We just heard the this news morning about your beautiful daughter Addison. It’s so amazing how strong these little ones are. Steve and I remember when we ran into at the Keg and how excited you were to tell us that you and Elaine were expecting and how you have just finished painting the baby’s room pink. She is one lucky little girl to have you two as parents. She is in great hands at B.C Children’s as we know from experience. We are thinking of all of you and wish Addison a speedy recovery and all the best in 2012.

    Love the Hoffmann Family

  14. Our 6 month old baby maya is in bc children’s icu right now and will likely need a heart transplant in the next couple days to survive. We have watched your story and it has given us hope. We just need to talk to someone who has been through it and you were the only people we could think of. If you are able could you contact us. My email is
    Thank you.

  15. Addison and her mommy and daddy are such an inspiration to our entire family. When our little Audrey was just 3 days old she stopped breathing and was given CPR by her grandpa, my husband, which later proved to be a miracle, not the miracle we wanted, but the miracle that was to save the lives of two precious people. She was rushed to the hospital in an ambulance and put on a ventilator. It was too late though. In the following days the doctors told us that Audrey had suffered oxygen deprivation and was legally brain dead. We were then approached about organ donation, which wouldn’t have been possible had grandpa not been there to do CPR. Her organs would have been too damaged. My daughter, Felicia, and the rest of our family didn’t hesitate to say “yes” to organ donation. We were told that there was a little baby that was a perfect match for her heart. We were later told, about 3 months later, that the baby who got Audrey’s heart lived in Canada and was up to about one month old. That was all we were told. Her kidneys went to a woman in California. We are so inspired by Addison and how well she is doing now and are so excited and happy and so many other adjectives I can’t think of right now. We have been praying for this baby all year long not knowing if the baby was a boy or girl but now we know… the baby was precious Addison. God bless her and keep her all the days of her life.
    From Audrey’s Grandma
    Donor Family
    Pamela Sullenger (in Reno, Nevada USA)

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